AARCC PUBLICATIONS

Titles are hyperlinks to abstracts in Pubmed

Predictive value of biomarkers of hepatic fibrosis in adult Fontan patients.

Wu FM, Earing MG, Aboulhosn JA, Johncilla ME, Singh MN, Odze RD, Ukomadu C, Gauvreau K, Landzberg MJ, Valente AM; Alliance for Adult Research in Congenital Cardiology (AARCC) Investigators.  J Heart Lung Transplant. 2016 Jul 27

Clinical Experience With the Subcutaneous Implantable Cardioverter-Defibrillator in Adults With Congenital Heart Disease.

Moore JP, Mondésert B, Lloyd MS, Cook SC, Zaidi AN, Pass RH, John AS, Fish FA, Shannon KM, Aboulhosn JA, Khairy P; Alliance for Adult Research in Congenital Cardiology (AARCC).  Circ Arrhythm Electrophysiol. 2016 Sep;9(9). pii: e004338. doi: 10.1161/CIRCEP.116.004338

Thromboprophylaxis for atrial arrhythmias in congenital heart disease: A multicenter study.

Khairy P, Aboulhosn J, Broberg CS, Cohen S, Cook S, Dore A, Fernandes SM, Fournier A, Kay J, Levesque S, Macle L, Marcotte F, Mondésert B, Mongeon FP, Opotowsky AR, Proietti A, Rivard L, Ting J, Thibault B, Zaidi A, Hamilton R; Anticoagulation Therapy in Congenital Heart Disease (TACTIC) investigators and the Alliance for Adult Research in Congenital Cardiology (AARCC). Int J Cardiol. 2016 Aug 13;223:729-735. doi: 10.1016/j.ijcard.2016.08.223. [Epub ahead of print]

Pheochromocytoma and Paraganglioma in Cyanotic Congenital Heart Disease.

Opotowsky AR, Moko L, Ginns J, Rosenbaum M, Greutmann M, Aboulhosn J, Hageman A, Kim Y, Deng LX, Grewal J, Zaidi AN, Almansoori G, Oechslin E, Earing M, Landzberg MJ, Singh MN, Wu F, Vaidya A; Alliance for Adult Research in Congenital Cardiology (AARCC). J Clin Endocrinol Metab. 2015 Jan 12.

Clinical research priorities in adult congenital heart disease.

Cotts T, Khairy P, Opotowsky AR, John AS, Valente AM, Zaidi AN, Cook SC, Aboulhosn J, Ting JG, Gurvitz M, Landzberg MJ, Verstappen A, Kay J, Earing M, Franklin W, Kogon B, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC).  Int J Cardiol. 2014 Feb 15;171(3):351-60.

Improving heart disease knowledge and research participation in adults with congenital heart disease (the Health, Education and Access Research Trial: HEART-ACHD).

Valente AM, Landzberg MJ, Gianola A, Harmon AJ, Cook S, Ting JG, Stout K, Kuehl K, Khairy P, Kay JD, Earing M, Houser L, Broberg C, Milliren C, Opotowsky AR, Webb G, Verstappen A, Gurvitz M; Alliance for Adult Research in Congenital Cardiology (AARCC) Investigators; Adult Congenital Heart Association (ACHA).  Int J Cardiol. 2013 Oct 9;168(4):3236-40. doi: 10.1016/j.ijcard.2013.04.004. Epub 2013 May 4.

Prevalence and Predictors of Gaps in Care Among Adult Congenital Heart Disease Patients: HEART-ACHD (The Health, Education, and Access Research Trial).

Gurvitz M, Valente AM, Broberg C, Cook S, Stout K, Kay J, Ting J, Kuehl K, Earing M, Webb G, Houser L, Opotowsky A, Harmon A, Graham D, Khairy P, Gianola A, Verstappen A, Landzberg M; Alliance for Adult Research in Congenital Cardiology (AARCC) and Adult Congenital Heart Association.  J Am Coll Cardiol. 2013 May 28;61(21):2180-4.

Shock-related anxiety and sexual function in adults with congenital heart disease and implantable cardioverter-defibrillators.

Cook SC, Marie Valente A, Maul TM, Dew MA, Hickey J, Jennifer Burger P, Harmon A, Clair M, Webster G, Cecchin F, Khairy P; Alliance for Adult Research in Congenital Cardiology.  Heart Rhythm. 2013 Jun;10(6):805-10.

Left and Right Ventricular Diastolic Function in Adults With Surgically Repaired Tetralogy of Fallot: A Multi-Institutional Study.

Aboulhosn JA, Lluri G, Gurvitz MZ, Khairy P, Mongeon FP, Kay J, Valente AM, Earing MG, Opotowsky AR, Lui G, Gersony DR, Cook S, Child J, Ting J, Webb G, Landzberg M, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC). Can J Cardiol. 2013 Jan 28.

Aortic root dilatation in adults with surgically repaired tetralogy of fallot: a multicenter cross-sectional study.

Mongeon FP, Gurvitz MZ, Broberg CS, Aboulhosn J, Opotowsky AR, Kay JD, Valente AM, Earing MG, Lui GK, Fernandes SM, Gersony DR, Cook SC, Ting JG, Nickolaus MJ, Landzberg MJ, Khairy P; Alliance for Adult Research in Congenital Cardiology (AARCC). Circulation. 2013 Jan 15;127(2):172-9.

Prevalence of left ventricular systolic dysfunction in adults with repaired tetralogy of fallot.

Broberg CS, Aboulhosn J, Mongeon FP, Kay J, Valente AM, Khairy P, Earing MG, Opotowsky AR, Lui G, Gersony DR, Cook S, Ting JG, Webb G, Gurvitz MZ; Alliance for Adult Research in Congenital Cardiology (AARCC).  Am J Cardiol. 2011 Apr 15;107(8):1215-20. Epub 2011 Feb 23

Heart rate response during exercise and pregnancy outcome in women with congenital heart disease.

Lui GK, Silversides CK, Khairy P, Fernandes SM, Valente AM, Nickolaus MJ, Earing MG, Aboulhosn JA, Rosenbaum MS, Cook S, Kay JD, Jin Z, Gersony DR; Alliance for Adult Research in Congenital Cardiology (AARCC).  Circulation. 2011 Jan 25;123(3):242-8. Epub 2011 Jan 10

Arrhythmia burden in adults with surgically repaired tetralogy of Fallot: a multi-institutional study.

Khairy P, Aboulhosn J, Gurvitz MZ, Opotowsky AR, Mongeon FP, Kay J, Valente AM, Earing MG, Lui G, Gersony DR, Cook S, Ting JG, Nickolaus MJ, Webb G, Landzberg MJ, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC). Circulation. 2010 Aug 31;122(9):868-75. Epub 2010 Aug 16

The CALF (Congenital Heart Disease in Adults Lower Extremity Systemic Venous Health in Fontan Patients) study.

Valente AM, Bhatt AB, Cook S, Earing MG, Gersony DR, Aboulhosn J, Opotowsky AR, Lui G, Gurvitz M, Graham D, Fernandes SM, Khairy P, Webb G, Gerhard-Herman M, Landzberg MJ; AARCC (Alliance for Adult Research in Congenital Cardiology) Investigators.  J Am Coll Cardiol. 2010 Jul 6;56(2):144-50.

Multicenter research in adult congenital heart disease.

Khairy P, Hosn JA, Broberg C, Cook S, Earing M, Gersony D, Kay J, Landzberg MJ, Nickolaus MJ, Opotowsky S, Valente AM, Warnes C, Webb G, Gurvitz MZ; Alliance for Adult Research in Congenital Cardiology (AARCC).   Int J Cardiol. 2008 Sep 26;129(2):155-9. Epub 2008 Jun 24. No abstract available.